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Immune thrombocytopenia (ITP) World Impact Survey (I‐WISh): Impact of ITP on health‐related quality of life

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Immune thrombocytopenia (ITP) World Impact Survey (I‐WISh): Impact of ITP on health‐related quality of life

American Journal of Hematology

Fecha depublicación: 27 October 2020

DOI: https://doi.org/10.1002/ajh.26036

Autores: Nichola Cooper, Alexandra Kruse, Caroline Kruse,Shirley Watson, Mervyn Morgan, Drew Provan, Waleed Ghanima, Donald M. Arnold, Yoshiaki Tomiyama, Cristina Santoro, Marc Michel, Serge Laborde, Barbara Lovrencic, Ming Hou, Tom Bailey, Gavin Taylor‐Stokes, Jens Haenig, James B. Bussel

Abstract: Immune thrombocytopenia (ITP) has a substantial, multifaceted impact on patients’ health‐related quality of life (HRQoL). Data describing which aspects of ITP physicians and patients perceive as having the greatest impact are limited. The ITP World Impact Survey (I‐WISh) was a cross‐sectional survey, including 1507 patients and 472 physicians, to establish the impact of ITP on HRQoL and productivity from patient and physician perspectives. Patients reported that ITP reduced their energy levels (85% of patients), capacity to exercise (77%), and limited their ability to perform daily tasks (75%). Eighty percent of physicians reported that ITP symptoms reduced patient HRQoL, with 66% reporting ITP‐related fatigue substantially reduced patient HRQoL.

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