What can we learn from using formal patient-reported outcome instruments to assess pain, functional impairment, anxiety, and depression in US adults with hemophilia?

European Journal of Hematology

Fecha de publicación: Marzo 2018

DOI: 10.1111/ejh.13026

Autores: Tyler W. Buckner, Katharine Batt, David L. Cooper and Christine L. Kempton

Background: People with hemophilia frequently suffer from arthropathy that leads to pain and functional impairment, ultimately resulting in reduced quality of life. The impact of pain and functional impairment on the lives of people with hemophilia was explored in the Pain, Functional Impairment, and Quality of Life (P-FiQ) study. Various patient-reported outcome (PRO) instruments were employed to assess the effect of pain and functional impairment on multiple aspects of health in people with hemophilia.

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